Share Your YOPD Story

I am writing you to see if you would be willing to share your story or stories. Parkinson & Movement Disorder Alliance (PMD Alliance) would like to hear your stories and thoughts as they relate to your personal experience with Young Onset Parkinson Disease (YOPD), whether as the person with Parkinson’s (PWP), loved one, friend or family member. 


Your feedback will help us develop important programs specific to YOPD, including a special storytelling book. Stories will be compiled into a free book to share, illustrated by Laura Crawford, on our website and with the YOPD community.  We will also be hosting a special livestream to talk about the book and how to access it.


We are collecting stories through November 8th.  Don’t miss having your voice be heard!


Please share your name and contact information in case we need to clarify any aspects of the stories. There is a place on the survey that asks whether you would like to have your name included with your story in the book. If you reply "yes," we will contact you regarding whether you would also like your photo included.


I hope you will share your experience, strengths, challenges, learnings and hope with the community.

Click Here to access the fillable form and feel free to share this message with others.


Sarah Jones, MPA, MS Strategic Design


Parkinson & Movement Disorder Alliance